Published: Sunday, September 3, 2006, Register-Guard
- by Cynthia Whitfield of Eugene (cynhome2
@msn.com) is a freelance writer. For more information about
the Autism Speaks walk, call Teri Baker at 686-8450, e-mail
teribaker97436@yahoo.com
or go to www.autismwalk.org\Eugene.
That's what life is like for many people with autism - including
my 12-year-old son Jalen, who also has mental retardation. Although
he struggles to understand many concepts most preschoolers grasp
with ease, he can read and write at a first-grade level. He
loves Mickey Mouse, Disneyland and his family. He has quicksilver
moods, a beautiful smile, and a very uncertain future.
Chances are most people know someone with this mystifying brain
disorder. In Oregon, about one in 122 people has some form of
autism, compared with one in 166 nationally, according to the
Centers for Disease Control and Prevention. It is now considered
one of the most common developmental disabilities.
The number of children diagnosed with autism has risen dramatically
since the 1980s, for reasons still unclear. Autism is more prevalent
than childhood cancer, cystic fibrosis, Down syndrome, cerebral
palsy and multiple sclerosis.
Autism is a neurological disorder that affects functioning
of the brain. Its hallmarks are impairments in social interaction
and communication. Some people with autism have little or no
speech, while others function at much higher levels. Many have
narrow interests or engage in repetitive behaviors, such as
repeatedly rewinding a videotape to watch the same scene or
saying the same phrase over and over.
No one knows what causes autism, but many researchers believe
there are multiple causes. According to the Princeton Child
Development Institute, these may include genetic factors, maternal
health problems during pregnancy, problems during delivery,
or exposure to toxic chemicals.
This last possibility is the most controversial. In recent
years some parents and professionals have cited the mercury-containing
preservative thimerosol once used in most vaccines as a cause
of autism. Others believe susceptible babies may suffer damage
from negative reactions to vaccines with or without thimerosol.
Although some recent studies suggest no link between vaccines
and autism, critics say there is much conflicting evidence.
In a column in the Aug. 18 edition of The Register-Guard, Rosalynn
Carter and Dr. Peter Hotez claim the autism-vaccine link is
"nonexistent," in part because babies diagnosed with
autism show unusual brain growth at the age of one month, "well
before" babies receive their first immunization.
However, babies born in the 1990s were routinely given the
Hepatitis B shot at birth until the practice was finally abandoned.
My own son received the shot after a difficult birth with serious
complications. He also developed severe jaundice. At this point
there's no way to prove that one, all or none of these factors
contributed to his disabilities.
In the meantime, more research is needed to help prevent and
treat autism and related disabilities. A walk to support autism
research organized by Autism Speaks, an organization that raises
funds for autism research, is scheduled for Sept.10 at Alton
Baker Park in Eugene. Registration is at 9 a.m., and the walk
begins at 10 a.m. Members of Autism Speaks organize walks all
over the United States, Canada and the United Kingdom.
All funds raised at the event will go into biomedical research.
Autism Speaks is sponsoring a University of Oregon research
project designed to help researchers gain insight into brain
regions affected in autism, and attempt to pinpoint a cellular
and molecular basis for the condition.
"The researchers we fund help fill in the gaps left by
government research efforts," says Scott Ryan, Autism Speaks
regional director. "It's hard to get government funding
for a project when you only have a theory. That's where we come
in. We evaluate research proposals and fund the more promising
ones.."
Local Autism Speaks walk organizer Teri Baker has a special
reason for organizing the first annual Eugene walk. Her daughter
Ragan, who had autism, died two years ago after respiratory
failure resulting from seizures. About one in four people with
autism develop seizures by the time they become young adults.
Teri donated Ragan's brain to Harvard for research, and she's
now working to raise awareness of the importance of brain tissue
donations to facilitate autism research. The brains of people
with and without autism are needed. "Most people think
that if they're classified as an organ donor, their brains will
also be donated. That's not true. People need a separate brain
donor designation," Baker says.
Sufficient research should produce advances in the prevention
and treatment of autism. Baker urges community members to create,
join or sponsor a walking team, or simply donate much-needed
funds.
Cynthia Whitfield of Eugene (cynhome2 @msn.com) is a freelance
writer. For more information about the Autism Speaks walk, call
Teri Baker at 686-8450, e-mail teribaker97436@yahoo .com or
go to www.autismwalk.org\Eugene.