It's another beautiful evening as I
write this. But tomorrow rain is forecast. What, did I think
it was gonna stay nice forever? Joy is never forever, and,
thankfully, neither is pain or sadness. Each in it's time,
and each to savor in it's own special way.
I try to look at challenges in my life
the same way. I really like the easy days - the ones where
people smile at me, say encouraging words to me, and stuff
goes right. But somehow I don't think I would enjoy them
as much without the hard days. The ones where my computer
just stops, or I can't find that phone number, or my ankle
feels like a lead balloon.
Like a bumper sticker I saw today: "Oh,
no, not another learning experience." On we go...
Coming up in less than two weeks (Sunday,
May 16, 1 - 6pm) is KindTree's
Autism Forum III - Supportive Interventions
Throughout the Life-Span.
We have gathered a terrific group of experienced people
waiting to share their expertise with you - stuff that can
help you through those "hard days". It's a FREE
event, so everyone can attend. But that doesn't mean it's
not valuable. It's a great place to get some info, to participate,
to empower, to share, to learn. It's for you.
And we'll be asking you
to share with all of us your personal list of resources
- your favorite dentist, doctor, school administrator, care
provider, consultant - people who succesfully work with
autists and are aware of their special needs. Please come.
We need each other.
One last word - FUNDRAISING!
We all had a really great time at our Family Festival
event. Many thanks to TR Kelley and Randy (the Raventones),
Gordon David Kaswell, Nel Applegate, Max and Dave Lester
and Emily Jensen for performing, and to Michelle and her
crew for organizing all the great hat making! View
Photo Album HERE!!
Despite all the fun, we missed our
financial goal. Please, give some thought to sending a bit
of money our way. I think I'll make a "THANK YOU"
page. You should be on it. Send a check ($10 would be nice),
or click on one of the options below. You, too, can be a
true KindTree supporter.
Thanks - Tim Mueller
KindTree - Autism Rocks Giving Opportunities
HELP US OUT!!!
1) Order an Autism Rocks T-shirt. We're in the process
of restocking and all sizes should be available, from kids
medium to adult XXX large, in black, natural, and our new
color - Forest Green!
These are $15 each plus $4.50 shipping (unless you live close
enough to come pick up? 521 7208). And don't forget our beautiful Note Cards!
2) Visit our online store at OregonLive CaféPress.
This site features Autism Rocks logo items as well as clothing,
bags, hats, baby things, holiday decorations and more printed
with autist's art. Check it out today.
3) Sign up for Escrip!
PLEASE SIGN UP! THIS IS
WORKING!! This program can send a percentage of each
purchase you make at a participating merchant to KindTree
Productions! Just go to www.escrip.com and enroll. It took me about
5 minutes. Enter our ID # 153141696 or Eugene or search
for KindTree. It's pretty simple. Participating merchants
include VISA, MasterCard, Big 5 Sports, Carl's Junior, PC
Market of Choice, Whole Foods Markets, Wild Oats, Office
Max, AAMCO, Edie Bauer, Sharper Image, Payless shoes, and
more. What'cha waiting for?
4) Send KindTree a personal donation.
Your contributions are tax deductible and much appreciated.
We need your help. Thanks.
1 p.m. - 6 p.m. Hilyard Community Center, 2580 Hilyard
Eugene, Oregon 97405
Mission: The purpose of KindTree Autism Forum 2004 is
to bring together families, individuals, service providers
and caregivers whose lives are impacted by Autism or Asperger's.
The forum is intended to provide an opportunity for dialogue
and exchange of information, and to provide a platform
to discuss prevailing issues, concerns, and possible solutions.
Also, when you arrive, we shall ask you to list services
you are presently using (for our resource guide, published
in KindTree's subsequent newsletter) and concerns you’d
like to address at our concluding brainstorming session
.
Panel Format: brief panelist intro’s, questions,
answers, and open discussion. Doors open at 1pm.
1:15-2:15pm: A panel
of people with autism speak to their experiences.
Facilitated by Cheryl Nel Applegate. Speakers: Josh
Fraim, T.R. Kelley, Max Lester, Mary-Minn Sirag.
2:30-3:30pm: Supportive
interventions for kids from elementary school
through high school.
Q&A facilitated by Donna Atkinson, parent. These
interventions prevent difficult situations (such as meltdowns
or other "behaviors") from escalating into something
menacing and possibly even dangerous. Panelists: Jessica
Neyman, Special Education Attorney; Betsy LaCroix, Director
of Case Coordination for Direction Service; Marilyn Nersesian,
Special Education Administrator for 4J; Mary Bromley,
Special Education Teacher at Crest Drive Elementary; Nan
Gray Lester, co-founder of the Asperger Advocacy Coalition.
3:45-4:45pm.Supportive
interventions for adults.
Facilitated by Gary Cornelius, case manager for Lane
DDS. These interventions prevent difficult situations
from escalating into brushes with law enforcement, psychiatric
personnel, and other officials unsavory and frightening
to the freaking out autist. Other panelists will be Melissa
Rizzo, Personal Agent from Full Access Brokerage; Steve
Brown, group home provider and former group home manager
at OSLP and former President of KindTree Productions;
Jill Adler from Protective Services; Doris Germain, Autism
Specialist for Linn-Benton County School District and
teacher at Autism Training and Support.
5-6pm. Where-to,
what-next brainstorming session with flip
charts. Facilitated by Nan Gray Lester, co-founder of
Asperger Advocacy Coalition
*Cabins
or Tent sites
*Lakeside
and Ocean Walks
*Non-competitive
Games
*Family
Oriented
*Vegetarian
Food
The
retreat is designed around the needs of those living
with autism. Parents and caregivers can bring their
autistic charges and relax with them over the weekend,
knowing that they are in a safe and nurturing environment.
The retreat
is a time for rejuvenation and solidarity. Autists are
accepted and enjoyed for themselves, not forced into
a procrustean neuro-normal mold.
This is
some of the greatest autistic fun there is.
Art Careers
Show and Sale
This Friday (May 7), Hilyard Community
Center will be hosting its spring Art Careers Show
and Sale, showcasing the work of community artists
with disabilities. A variety of quality artistic pieces
including jewelry, paintings and cards will be available
for purchase (and visual enjoyment).
All proceeds from every sale go directly
to the artist who created the piece. Refreshments
will be served.
Art instructors are Mary-Minn Sirag
(jewelry class) and Amanda Hickok and Cathy Pekarsky
(painting class).
If you have further questions, call
Molly Elliott at 582-5311.
¨ Hotel reservations
Deadline: April 4, 2004—call today! 800-937-6660
or 541-342-2000. (Be sure to mention The Arc of Oregon
Conference to obtain the group rate of $83 per night.)
¨ Exhibits will
be open throughout the conference (See preliminary
schedule below.)
¨ Registration
Desk opens on Friday, May 7, 2004 at 12:00 (See preliminary
schedule below)
¨ Up to thirty-two
break out sessions plus exhibits!
¨ Scholarships
for registration will be available for people with
developmental disabilities and their families who
have not received these funds within the last two
years. For more information click
here or call Pam at 343-5256.
May Eugene Clinics at Bridgeway House:
May 14 Dr. John Green Dr. Green is a DAN! practitioner from Oregon
City who provides biological treatments for children
with autism and other related disabilities. Please
call Patricia Wigney for more information or to schedule
an appointment. (541) 345-0805. He is also scheduled
to be at Bridgeway House Friday, June 28th so mark
you calendars and call ahead for an appointment.
Brown Bag Lunch 12:30-2p.m.,Open
Discussion with Dr. Green and Dr. Contreras Open parent discussion group on biological
treatments for autism that are safe and inexpensive
treatments to use at home. This is a great opportunity
to talk with Dr. Green FREE of charge about many of
the biological options available! Please bring your
lunch and join us. For more information, call Patricia
Wigney at (541) 345-0805.
Dr. Alejandro Contreras, N.D.
Dr. Contreras follows the DAN! protocol and also has
a practice in Oregon City. He practices general medicine
with a focus on clinical nutrition, allergy, immunology
and autism. He is accepting new patients. Please call
Patricia Wigney for more information or to schedule
an appointment at (541) 345-0805.
May 19th - Crime Prevention
Talk Tod Schneider from the Eugene Police Dept
will give a talk May 19th at 7 p.m. at BWH.
Social
Skills Classes 2004 Autism Training and Support, Inc. is offering
social skills classes for students with High Functioning
Autism or Asperger syndrome. We will be offering three classes*:
Thursdays 4:30-6:00 pm, May
13 - June 17, 2004
Teens with Asperger Syndrome
Thursdays 6:30-8:00 pm, May
13 - June 17, 2004
Teens and Young Adults with High Functioning Autism
Taught by Doris Germain, M.Ed.,
with guidance from Dawn Stahlberg, Autism Specialist. Doris
has a Master's Degree in Special Education and has worked
as an Autism Specialist since 1997. Doris has varied experience
with students of all ages with Autism Spectrum Disorder.
SPECIAL
TWO DAY AUTISM CONFERENCE
May 14 & 15, 2004 6-9 p.m
The Willamette Falls Hospital Community Education Center
Friday, May 14, 2004
"It’s Not Just a Guy Thing: What people who love
people with AD/HD, ODD, OCD, LD, Aspergers Autism and or
mental illness must know about autism"
Saturday, May 15, 2004
8:30am to 5:30 pm
"Life After High School: Making the successful transition
to adult life for all students in the Autism Spectrum"
Autism
One 2004 Conference, May 27 - 30, 2004, Chicago
The Most Comprehensive Conference
on Autism Ever Assembled
Autism One 2004, the most comprehensive
conference on autism ever assembled, will be held May 27
- 30, 2004, in Chicago. It is a conference for parents and
professionals for the care, treatment, and recovery of children
with autism. Our web site is http://AutismOne.org.
The conference organizers
are themselves parents of children with autism. Parents
are, and must remain, the driving force of our community.
The issues are too sacred and the stakes too high
to delegate to outside interests.
Keynote Address
Congressman Dave Weldon, MD will deliver the keynote
address. Dave Weldon, a physician by training, has
been for the past several years, and continues to
be one of the autism community's staunchest supporters
on Capitol Hill.
More than 100 Presentations - World's Leading Authorities
Autism One features many of the world's leading researchers,
educators, practitioners, agencies, and parents. Featuring
over 100 speakers including such experts as Dr. Boyd
Haley, Dr. William Walsh, Dr. Jeff Bradstreet, Dr.
Andy Wakefield, Dr. Sudhir Gupta, and Dr. William
Shaw among others. Learn about the latest treatments,
your rights when dealing with school districts, the
best ways to handle insurance companies, how to petition
government agencies, along with a host of other pressing
issues. In addition, leading parent-advocates and
autism organizations will be on hand to present and
inform.
Special Conference Prep Day
Autism One is even more comprehensive with a special
Conference Prep Day, Thursday, May 27, to help you
get more out of the conference and understand autism
at a broader and deeper level. It will be a day of
lofty ideas and practical everyday applications.
Meet Officials from the CDC, NIH and IOM
High-ranking officials from the Center for Disease
Control and Prevention (CDC), National Institutes
of Health (NIH), and Institute of Medicine (IOM) will
present, answer questions and explain the government's
present and future commitments in the fight against
autism. Register your concerns and make your voice
heard.
Questions and Answers Do Not Stop at the Boundary
of a Discipline
Autism is a multivariate disease. As parents we know
questions and answers do not stop at the boundary
of a discipline. We offer four tracks to help you
make the most informed choices, and decisions.
The tracks include:
1. Biomedical Treatments
2. Behavior / Communication / Education Therapies
3. Complementary and Alternative Medicine
4. Government / Legal / Personal Issues
1. Biomedical Treatments (some of the topics by track
include)
Autoimmune factors / treatments
To all persons with, and
parents, caregivers and love ones of persons with autism;
On June 19th at the Oregon Convention Center, the
Northwest Autism Foundation and Oregon Health Sciences
University will publicly announce that OHSU has agreed to
become one of five medical treatment centers in the nation
that will be established to treat children with autism following
an accepted medical protocol that has been nationally recognized
as effective in treating children with autism that suffer
from gastrointestinal, absorption and other related medical
problems.
The conference will last
all day and is currently slated to begin at 9:00 a.m.
OHSU will be replicating
the L.A.D.D.E.R.S. program in Boston, currently being run
by one of the worlds leading brain specialists Dr. Margaret
Bowman and Dr. Timothy Buie, a pediatric gastroenterologist
from Harvard Medical who has had huge success in treating
children with autism.
For more information on
the L.A.D.D.E.R.S. program that OHSU will emulate, and details
regarding results of medical procedures that have been performed
in Boston, visit the Northwest Autism Foundation website
at www.autismnwaf.org.
The press will be at this conference, as will representatives
from Boston, the Northwest Autism Foundation and others.
Break-out sessions will also be held in the afternoon session.
THE CHANGING
FACE OF POVERTY
Community Action Directors of Oregon will sponsor
a poverty conference,
"The Changing Face of Poverty" on November
15, 16 and 17 in Seaside, Oregon.
The keynote speech will be delivered by JIM
HIGHTOWER, former Texas Agriculture Commissioner.
For information on the conference please call the
Community Action Directors of Oregon (CADO) at (503)
316-3951 or email angie@cado-oregon.org
NEWS:
Child
Behaviour Study
Emily Neuhause #346-1987
- eneuhaus@darkwing.uoregon.edu
- is doing a study trying "to understand how children
and adolescents with and without autism think about the behavior
of the people around them".
They're looking for children
between 5-10 to come to their playroom at the UO campus for
one hour. Childcare provided for siblings. More info contact
Emily.
DIRECT SUPPORTS
CONFERENCE SEEKS PRESENTERS
Presenters
and exhibitors are being sought for The Oregon Conference
on Direct Supports, a conference for direct support workers,
self-advocates, and families, sponsored by the Oregon Developmental
Disabilities Coalition in collaboration with the Oregon Rehabilitation
Association.
Pre-conference Training: July 28
Conference Sessions: July 29 and 30
Oregon State University Conference Center, Corvallis, Oregon
The theme of the conference
is "The Power of One", focusing on how one person
can make a difference in the lives of many. Over 600 participants
interested in the field of developmental disabilities are
making plans to attend. The conference will offer close to
100 concurrent sessions on the following topics:
Aging Issues - Rights - Food, Fitness and Fun - Community
Access/Connections/Resources - Person-Centered Planning -
Mental Health Issues - Challenging Issues - Specific Disability
Information- Motivation/Support - Best Practices for staff
support - Values - Death, dying, grief issues - "DD Services
101" - Employment issues - Emerging Services
Session and Exhibit
proposals are due on or before MONDAY, APRIL 26, 2004.
For presentation proposal materials, please contact:
Marianne Davis, Oregon Rehabilitation Association
1655 25th Street SE
Salem OR 97302 mdavis@oregonrehabilitation.org
> Fax: 503-585-3722
> phone: 503-585-3337
CDC's unspoken acceptance of vaccine
additive raises furor
By Sandy Kleffman
CONTRA COSTA TIMES
Federal officials have added the flu vaccine to the routine
immunization schedule for children, but will remain silent
about whether parents should request a mercury-free version
of the shot.
Critics blasted last week's decision,
particularly in light of government warnings about other
types of mercury exposure.
"There are all these concerns about
mercury from these coal-powered plants and yet they kind
of shrug their shoulders at mercury in the vaccines and
frankly, I'm outraged," said Rep. Dave Weldon, R-Florida,
one of the few members of Congress who also is a physician. MORE>>>
New Pink &White
M&M's
The makers of M&M candies has teamed up with the Susan
G. Komen Breast Cancer Foundation to raise funds
through the sale of their new " pink &white "
M&M candies. For each 8-ounce bag of the special candies
sold, the makers of M&M(Masterfoods) will donate 50
cents to the foundation. The next timeyou want a treat,
please pick up a bag (now sold in stores nationwide) -you
will be donating to a great cause and satisfying your sweet
tooth.
JOIN
THE OREGON NETWORK
The Oregon Network is a collaborative statewide network
of disability organizations and their members, including
people with disabilities, their families, friends, providers
and policymakers.
The Oregon Network allows members to share information,
receive action alerts, and learn about events at state,
local and national level. Members will also have the opportunity
to voice opinions on policy issues and learn about training
and empowerment opportunities.
You may also use the form to receive The Oregon Clarion
newspaper and The People First Connection magazine. Both
publications are free.
Please help us grow this network. Forward this message to
friends and colleagues. There is strength in numbers.
To join The Oregon Network simply visit www.ocdd.org
and click on the link.
The Oregon Network is a project of the Oregon Council on
Developmental Disabilities and the Oregon Developmental
Disabilities Coalition.
This fits in with some things I am
thinking about why " autism rocks "
Subject:
Another perspective from a parent of a child with autism Autistics Need Acceptance, Not Cure
Wisconsin State Journal
Saturday, April 24, 2004
Morton Ann Gernsbacher
This month, which is Autism Awareness Month, I'm hiding
my eyes and those of my autistic 8-year old son from the
media. National headlines that describe autism as an epidemic,
or pandemic. Public service announcements liken autism to
being kidnapped.
A government Web site defines autism
as a "devastating scourge." An autism "expert"
decrees that autism is worse "than Sept. 11 and AIDS
combined." An Autism Society Canada board member proclaims
that autism is worse than cancer -- because people with
autism have normal lifespans.
Have you -- like my son and me -- ever heard parents say
how learning that their child was autistic was like experiencing
a death in their family? Have you ever been at the playground
when a mother classifies her children, standing right there
beside her, as this one who is autistic but these other
two who are -- thank goodness -- perfectly normal?
They say that autism entails difficulty taking another person's
perspective, appreciating how another person might feel.
But when I read or hear such hate speech I wonder: Exactly
who has a problem taking another person's perspective? Who
can't appreciate the feelings of others?
My son surely can. He understands quite well that there
are so-called autism "advocates" who despise autism,
who march thousand-fold against it with placards calling
for its defeat, its demise. His demise.
Oh, you say, those people don't want
to get rid of my son, they just want to get rid of that
part of him that's autistic. But research demonstrates that
autistic traits are distributed into the non-autistic population;
some people have more of them, some have fewer. History
suggests that many individuals whom we would today diagnose
as autistic -- some severely so -- contributed profoundly
to our art, our math, our science, and our literature.
Most poignantly, many autistics affirm that it would be
impossible to segregate the part of them that is autistic.
To take away their autism is to take away their personhood.
Despite our politically correct labeling, they are autistic;
they don't "have" autism any more than homosexuals
have gayness or lesbianism. Like their predecessors in human
rights, many autistics don't want to be cured; they want
to be accepted. And like other predecessors in civil rights,
many autistics don't want to be required to imitate the
majority just to earn their rightful place in society.
I'm a middle-aged psychology professor who holds an endowed
chair at a major research university. But my son has taught
me far more than I ever learned in my lab. Every time he
walks by a poster avowing that autism must be eradicated,
he teaches me grace. Every time he ignores one of the countless
scholarly articles that tower above my desk, asserting he
is disordered, he teaches me tolerance. Every time he embraces
a world that so frequently rebuffs him, he teaches me unconditional
love.
What if next year we celebrate the diversity of social interaction
observed within and across all cultures? What if this "awareness"
month marked a time to appreciate the variation that all
humans demonstrate in their style and competence in communication?
What if it heralded an era during which we marveled at the
determined focus that in my occupation often wins indefinite
tenure but in a precocious child gets labeled as diseased?
Then, neither my son nor I would feel compelled to hide.
Gernsbacher is Vilas
Research Professor and Sir Frederic Bartlett
Professor of Psychology, UW-Madison.
Autism Spectrum Disorder (ASD)
is a neurobiological disorder of development. It causes
problems with the way a person processes, uses and organizes
information. ASD affects a person's abilities in Communication,
Social Interaction and Sensory Processing. People with
ASD may also have restricted, repetitive behavior, interests,
and activities that can affect how they learn.