KindTree is dedicated to serving and celebrating the Autism Community through art, education, and recreation. With warm hearted whimsy, an open sense of family and a deep level of caring, we reach inside ourselves to embrace our flaws, gather our strengths, and offer our love while reaching out to people with autism spectrum disorders, their families and care givers. Through the power of self-advocacy in an atmosphere of acceptance and respect, autistic and neuro-normal people alike can work toward self- realization.
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Autism Community News   May, 2004

KindTree Productions, Inc. “Autism Rocks” presents:

Autism Forum III

Supportive Interventions Throughout the Life-Span

Visit www.escrip.com

Art by people with autism:
Notecards and More...
Help Support Artists
With Autism

 

KindTree   FLASH !       May, 2004            www.kindtree.org

Greetings:

It's another beautiful evening as I write this. But tomorrow rain is forecast. What, did I think it was gonna stay nice forever? Joy is never forever, and, thankfully, neither is pain or sadness. Each in it's time, and each to savor in it's own special way. flowers - Renee Curtiss

I try to look at challenges in my life the same way. I really like the easy days - the ones where people smile at me, say encouraging words to me, and stuff goes right. But somehow I don't think I would enjoy them as much without the hard days. The ones where my computer just stops, or I can't find that phone number, or my ankle feels like a lead balloon.

Like a bumper sticker I saw today: "Oh, no, not another learning experience." On we go...

Coming up in less than two weeks (Sunday, May 16, 1 - 6pm) is KindTree's Autism Forum III - Supportive Interventions Throughout the Life-Span. We have gathered a terrific group of experienced people waiting to share their expertise with you - stuff that can help you through those "hard days". It's a FREE event, so everyone can attend. But that doesn't mean it's not valuable. It's a great place to get some info, to participate, to empower, to share, to learn. It's for you.

And we'll be asking you to share with all of us your personal list of resources - your favorite dentist, doctor, school administrator, care provider, consultant - people who succesfully work with autists and are aware of their special needs. Please come. We need each other.

One last word - FUNDRAISING! We all had a really great time at our Family Festival event. Many thanks to TR Kelley and Randy (the Raventones), Gordon David Kaswell, Nel Applegate, Max and Dave Lester and Emily Jensen for performing, and to Michelle and her crew for organizing all the great hat making! View Photo Album HERE!!

Despite all the fun, we missed our financial goal. Please, give some thought to sending a bit of money our way. I think I'll make a "THANK YOU" page. You should be on it. Send a check ($10 would be nice), or click on one of the options below. You, too, can be a true KindTree supporter.

Thanks - Tim Mueller


KindTree - Autism Rocks  Giving Opportunities
HELP US OUT!!!

1) Order an Autism Rocks T-shirt. We're in the process of restocking and all sizes should be available, from kids medium to adult XXX large, in black, natural, and our new color - Forest Green! These are $15 each plus $4.50 shipping (unless you live close enough to come pick up? 521 7208). And don't forget our beautiful Note Cards!

2) Visit our online store at OregonLive CaféPress. This site features Autism Rocks logo items as well as clothing, bags, hats, baby things, holiday decorations and more printed with autist's art. Check it out today.

3) Sign up for Escrip! PLEASE SIGN UP! THIS IS WORKING!! This program can send a percentage of each purchase you make at a participating merchant  to KindTree Productions!  Just go to www.escrip.com and enroll. It took me about 5 minutes. Enter our ID # 153141696 or Eugene or search for KindTree. It's pretty simple. Participating merchants include VISA, MasterCard, Big 5 Sports, Carl's Junior, PC Market of Choice, Whole Foods Markets, Wild Oats, Office Max, AAMCO, Edie Bauer, Sharper Image, Payless shoes, and more. What'cha waiting for?

4) Send KindTree a personal donation. Your contributions are tax deductible and much appreciated. We need your help. Thanks.
You Can Do It! Our Donation Page...
 
Please direct all orders to: KindTree, 2096 1/2 Arthur St, Eugene, OR  97405 - 541 521 7208
 

KINDTREE CALENDAR:

 
 
KindTree's Autism Support Group for young and old adults
with Autism Spectrum Disorders
Mondays,  May 10, June 14
 
St Mary's Episcopal Church, at Pearl and 13th in Eugene  4:30 - 6PM in the kindergarten classroom downstairs.
Facilitated by Cheryl Nel Applegate
Call Mary-Minn at 689 2228

KindTree Autism Forum

Sunday, May 16, 2004

Free

Supportive Interventions
Throughout the Life-Span

 

1 p.m. - 6 p.m. Hilyard Community Center, 2580 Hilyard Eugene, Oregon 97405

Mission: The purpose of KindTree Autism Forum 2004 is to bring together families, individuals, service providers and caregivers whose lives are impacted by Autism or Asperger's. The forum is intended to provide an opportunity for dialogue and exchange of information, and to provide a platform to discuss prevailing issues, concerns, and possible solutions. Also, when you arrive, we shall ask you to list services you are presently using (for our resource guide, published in KindTree's subsequent newsletter) and concerns you’d like to address at our concluding brainstorming session .

Panel Format: brief panelist intro’s, questions, answers, and open discussion. Doors open at 1pm.

1:15-2:15pm: A panel of people with autism speak to their experiences.

Facilitated by Cheryl Nel Applegate. Speakers: Josh Fraim, T.R. Kelley, Max Lester, Mary-Minn Sirag.

2:30-3:30pm: Supportive interventions for kids from elementary school
through high school
.

Q&A facilitated by Donna Atkinson, parent. These interventions prevent difficult situations (such as meltdowns or other "behaviors") from escalating into something menacing and possibly even dangerous. Panelists: Jessica Neyman, Special Education Attorney; Betsy LaCroix, Director of Case Coordination for Direction Service; Marilyn Nersesian, Special Education Administrator for 4J; Mary Bromley, Special Education Teacher at Crest Drive Elementary; Nan Gray Lester, co-founder of the Asperger Advocacy Coalition.

3:45-4:45pm. Supportive interventions for adults.

Facilitated by Gary Cornelius, case manager for Lane DDS. These interventions prevent difficult situations from escalating into brushes with law enforcement, psychiatric personnel, and other officials unsavory and frightening to the freaking out autist. Other panelists will be Melissa Rizzo, Personal Agent from Full Access Brokerage; Steve Brown, group home provider and former group home manager at OSLP and former President of KindTree Productions; Jill Adler from Protective Services; Doris Germain, Autism Specialist for Linn-Benton County School District and teacher at Autism Training and Support.

5-6pm. Where-to, what-next brainstorming session with flip charts. Facilitated by Nan Gray Lester, co-founder of Asperger Advocacy Coalition

Agency display tables available.

Refreshments will be provided. Questions? 689-2228 Forum@kindtree.org


YES!! Already Taking Reservation!!
KindTree Summer Autism Camp/Retreat
August 27 - 29, 2004
Just south of Florence, Oregon on Siltcoos Lake
*Cabins or Tent sites
*Lakeside and Ocean Walks
*Non-competitive Games
*Family Oriented
*Vegetarian Food
 The retreat is designed around the needs of those living with autism. Parents and caregivers can bring their autistic charges and relax with them over the weekend, knowing that they are in a safe and nurturing environment.
The retreat is a time for rejuvenation and solidarity. Autists are accepted and enjoyed for themselves, not forced into a procrustean neuro-normal mold.
This is some of the greatest autistic fun there is.
Boy Scout  Camp Baker, Siltcoos Lake
Go here for more info Go here to Volunteer

COMMUNITY CALENDAR:

Art Careers Show and Sale
little bird - Frank Flanders This Friday (May 7), Hilyard Community Center will be hosting its spring Art Careers Show and Sale, showcasing the work of community artists with disabilities. A variety of quality artistic pieces including jewelry, paintings and cards will be available for purchase (and visual enjoyment).

All proceeds from every sale go directly to the artist who created the piece. Refreshments will be served.

Art instructors are Mary-Minn Sirag (jewelry class) and Amanda Hickok and Cathy Pekarsky (painting class).

If you have further questions, call Molly Elliott at 582-5311.


The Arc of Oregon Annual State Convention

Eugene Hilton

May 7th and 8th, 2004

Fast Facts:

¨ Hotel reservations Deadline: April 4, 2004—call today! 800-937-6660 or 541-342-2000. (Be sure to mention The Arc of Oregon Conference to obtain the group rate of $83 per night.)

¨ Exhibits will be open throughout the conference (See preliminary schedule below.)

¨ Registration Desk opens on Friday, May 7, 2004 at 12:00 (See preliminary schedule below)

¨ Up to thirty-two break out sessions plus exhibits!

¨ Scholarships for registration will be available for people with developmental disabilities and their families who have not received these funds within the last two years. For more information click here or call Pam at 343-5256.


May Eugene Clinics at Bridgeway House:

May 14
Dr. John Green
Dr. Green is a DAN! practitioner from Oregon City who provides biological treatments for children with autism and other related disabilities. Please call Patricia Wigney for more information or to schedule an appointment. (541) 345-0805. He is also scheduled to be at Bridgeway House Friday, June 28th so mark you calendars and call ahead for an appointment.

Brown Bag Lunch 12:30-2p.m.,Open Discussion with Dr. Green and Dr. Contreras
Open parent discussion group on biological treatments for autism that are safe and inexpensive treatments to use at home. This is a great opportunity to talk with Dr. Green FREE of charge about many of the biological options available! Please bring your lunch and join us. For more information, call Patricia Wigney at (541) 345-0805.

Dr. Alejandro Contreras, N.D.
Dr. Contreras follows the DAN! protocol and also has a practice in Oregon City. He practices general medicine with a focus on clinical nutrition, allergy, immunology and autism. He is accepting new patients. Please call Patricia Wigney for more information or to schedule an appointment at (541) 345-0805.

May 19th - Crime Prevention Talk
Tod Schneider from the Eugene Police Dept will give a talk May 19th at 7 p.m. at BWH.

More classes and events here: www.bridgewayhouse.org.


Autism Training and Support, Inc.
1355-B River Road , Eugene, OR 97404

Social Skills Classes 2004
Autism Training and Support, Inc. is offering social skills classes for students with High Functioning Autism or Asperger syndrome. We will be offering three classes*:

Thursdays 4:30-6:00 pm, May 13 - June 17, 2004
Teens with Asperger Syndrome

Thursdays 6:30-8:00 pm, May 13 - June 17, 2004
Teens and Young Adults with High Functioning Autism

Taught by Doris Germain, M.Ed., with guidance from Dawn Stahlberg, Autism Specialist. Doris has a Master's Degree in Special Education and has worked as an Autism Specialist since 1997. Doris has varied experience with students of all ages with Autism Spectrum Disorder.


SPECIAL TWO DAY AUTISM CONFERENCE
May 14 & 15, 2004
6-9 p.m
The Willamette Falls Hospital Community Education Center

Friday, May 14, 2004
"It’s Not Just a Guy Thing: What people who love people with AD/HD, ODD, OCD, LD, Aspergers Autism and or mental illness must know about autism"

Saturday, May 15, 2004
8:30am to 5:30 pm
"Life After High School: Making the successful transition to adult life for all students in the Autism Spectrum"

(Click Here For Details) NW Autism Foundation


Autism One 2004 Conference, May 27 - 30, 2004, Chicago

The Most Comprehensive Conference on Autism Ever Assembled

Autism One 2004, the most comprehensive conference on autism ever assembled, will be held May 27 - 30, 2004, in Chicago. It is a conference for parents and professionals for the care, treatment, and recovery of children with autism. Our web site is http://AutismOne.org.

The conference organizers are themselves parents of children with autism. Parents are, and must remain, the driving force of our community. The issues are too sacred and the stakes too high to delegate to outside interests.

Keynote Address
Congressman Dave Weldon, MD will deliver the keynote address. Dave Weldon, a physician by training, has been for the past several years, and continues to be one of the autism community's staunchest supporters on Capitol Hill.

More than 100 Presentations - World's Leading Authorities

Autism One features many of the world's leading researchers, educators, practitioners, agencies, and parents. Featuring over 100 speakers including such experts as Dr. Boyd Haley, Dr. William Walsh, Dr. Jeff Bradstreet, Dr. Andy Wakefield, Dr. Sudhir Gupta, and Dr. William Shaw among others. Learn about the latest treatments, your rights when dealing with school districts, the best ways to handle insurance companies, how to petition government agencies, along with a host of other pressing issues. In addition, leading parent-advocates and autism organizations will be on hand to present and inform.

Special Conference Prep Day

Autism One is even more comprehensive with a special Conference Prep Day, Thursday, May 27, to help you get more out of the conference and understand autism at a broader and deeper level. It will be a day of lofty ideas and practical everyday applications.

Meet Officials from the CDC, NIH and IOM
High-ranking officials from the Center for Disease Control and Prevention (CDC), National Institutes of Health (NIH), and Institute of Medicine (IOM) will present, answer questions and explain the government's present and future commitments in the fight against autism. Register your concerns and make your voice heard.

Questions and Answers Do Not Stop at the Boundary of a Discipline

Autism is a multivariate disease. As parents we know questions and answers do not stop at the boundary of a discipline. We offer four tracks to help you make the most informed choices, and decisions.

 

The tracks include:
1. Biomedical Treatments
2. Behavior / Communication / Education Therapies
3. Complementary and Alternative Medicine
4. Government / Legal / Personal Issues

1. Biomedical Treatments (some of the topics by track include)
Autoimmune factors / treatments

Biochemistry of autism

Casein- gluten-free diet

Chelation - many forms of

Dental care

Diagnosis

Enzymes

Essential fatty acids

Food / nutrition / diet / vitamins / minerals / organic foods

Environmental medicine / toxins

IVIG, secretin, transfer factors, IV glutathione

Neurological testing, findings, treatments

Phenol sulfur transferase deficiency

Ongoing research

Vaccinations

2. Behavior / Communication / Education Therapies

Applied Behavior Analysis (ABA)

Auditory Integration

Computers as learning tools

Greenspan / Floor time

Home schooling

Music therapy

Occupational Therapy

Pivotal Response Training (PVT)

Psychological counseling, testing

Puberty and beyond

Relationship Development Intervention (RDI)

Supra-Modal Integrative Learning Experience (SMILE)

Sensory Integration

Verbal Behavior

Vision Therapy

3. Complementary and Alternative Medicine

Ayurveda Medicine

Chiropractic

Detoxification

Homeopathy

Naturopathic Medicine

Hyperbaric oxygen treatment

Mother's milk

Neurofeedback

Neural organization technique

Orthomolecular Medicine

Raw milk

Specific Carbohydrate Diet (SCD)

Traditional Chinese Medicine (TCM)

4. Government / Legal / Personal Issues

Autism the law and you

Center for Disease Control (CDC) findings and future directions

Counseling - Coping and communication for parents

Dealing with insurance companies

Estate Planning

Fathers and autism

Individual Evaluation Plans (IEPs) and School systems

Institute of Medicine (IOM) findings and future directions

Legislative action

National Institutes of Health (NIH) findings and future directions

Obtaining government services

Vaccines the law and you

http://AutismOne.org


Autism Oasis Conference June 19th

To all persons with, and parents, caregivers and love ones of persons with autism; On June 19th at the Oregon Convention Center, the Northwest Autism Foundation and Oregon Health Sciences University will publicly announce that OHSU has agreed to become one of five medical treatment centers in the nation that will be established to treat children with autism following an accepted medical protocol that has been nationally recognized as effective in treating children with autism that suffer from gastrointestinal, absorption and other related medical problems.

The conference will last all day and is currently slated to begin at 9:00 a.m.

OHSU will be replicating the L.A.D.D.E.R.S. program in Boston, currently being run by one of the worlds leading brain specialists Dr. Margaret Bowman and Dr. Timothy Buie, a pediatric gastroenterologist from Harvard Medical who has had huge success in treating children with autism.

For more information on the L.A.D.D.E.R.S. program that OHSU will emulate, and details regarding results of medical procedures that have been performed in Boston, visit the Northwest Autism Foundation website at www.autismnwaf.org. The press will be at this conference, as will representatives from Boston, the Northwest Autism Foundation and others. Break-out sessions will also be held in the afternoon session.


THE CHANGING FACE OF POVERTY
Community Action Directors of Oregon will sponsor a poverty conference,
"The Changing Face of Poverty" on November 15, 16 and 17 in Seaside, Oregon.

The keynote speech will be delivered by JIM HIGHTOWER, former Texas Agriculture Commissioner.

For information on the conference please call the Community Action Directors of Oregon (CADO) at (503) 316-3951 or email angie@cado-oregon.org


NEWS:

Child Behaviour Study

Emily Neuhause #346-1987 - eneuhaus@darkwing.uoregon.edu - is doing a study trying "to understand how children and adolescents with and without autism think about the behavior of the people around them".

They're looking for children between 5-10 to come to their playroom at the UO campus for one hour. Childcare provided for siblings. More info contact Emily.

DIRECT SUPPORTS CONFERENCE SEEKS PRESENTERS

Presenters and exhibitors are being sought for The Oregon Conference on Direct Supports, a conference for direct support workers, self-advocates, and families, sponsored by the Oregon Developmental Disabilities Coalition in collaboration with the Oregon Rehabilitation Association.
Pre-conference Training: July 28
Conference Sessions: July 29 and 30

Oregon State University Conference Center, Corvallis, Oregon

The theme of the conference is "The Power of One", focusing on how one person can make a difference in the lives of many. Over 600 participants interested in the field of developmental disabilities are making plans to attend. The conference will offer close to 100 concurrent sessions on the following topics:
Aging Issues - Rights - Food, Fitness and Fun - Community Access/Connections/Resources - Person-Centered Planning - Mental Health Issues - Challenging Issues - Specific Disability Information- Motivation/Support - Best Practices for staff support - Values - Death, dying, grief issues - "DD Services 101" - Employment issues - Emerging Services

Session and Exhibit proposals are due on or before MONDAY, APRIL 26, 2004.
For presentation proposal materials, please contact:
Marianne Davis, Oregon Rehabilitation Association
1655 25th Street SE
Salem OR 97302
mdavis@oregonrehabilitation.org
> Fax: 503-585-3722
> phone: 503-585-3337


SELF-ADVOCATES AND TECHNOLOGY

A Beach Center survey for Self-Advocates about their use of information technology, including computers and cell phones, is on the web at http://survey.ablelinktech.com/QuestNet/bcstart.asp


"Whatever we resist, persists - Whatever we think about, we bring about".


Activism:
 

National Autism Association Newsletter
The National Autism Association Weekly E-Newsletter.

 

http://www.contracostatimes.com/mld/cctimes/news/nation/8572390.htm

Posted on Sun, May. 02, 2004


CDC's unspoken acceptance of vaccine additive raises furor

By Sandy Kleffman

CONTRA COSTA TIMES


Federal officials have added the flu vaccine to the routine immunization schedule for children, but will remain silent about whether parents should request a mercury-free version of the shot.

Critics blasted last week's decision, particularly in light of government warnings about other types of mercury exposure.

"There are all these concerns about mercury from these coal-powered plants and yet they kind of shrug their shoulders at mercury in the vaccines and frankly, I'm outraged," said Rep. Dave Weldon, R-Florida, one of the few members of Congress who also is a physician.
MORE>>>


New Pink &White M&M's

The makers of M&M candies has teamed up with the Susan G. Komen Breast Cancer Foundation to raise funds through the sale of their new " pink &white " M&M candies. For each 8-ounce bag of the special candies sold, the makers of M&M(Masterfoods) will donate 50 cents to the foundation. The next timeyou want a treat, please pick up a bag (now sold in stores nationwide) -you will be donating to a great cause and satisfying your sweet tooth.


JOIN THE OREGON NETWORK

The Oregon Network is a collaborative statewide network of disability organizations and their members, including people with disabilities, their families, friends, providers and policymakers.

The Oregon Network allows members to share information, receive action alerts, and learn about events at state, local and national level. Members will also have the opportunity to voice opinions on policy issues and learn about training and empowerment opportunities.

You may also use the form to receive The Oregon Clarion newspaper and The People First Connection magazine. Both publications are free.

Please help us grow this network. Forward this message to friends and colleagues. There is strength in numbers.

To join The Oregon Network simply visit www.ocdd.org and click on the link.

The Oregon Network is a project of the Oregon Council on Developmental Disabilities and the Oregon Developmental Disabilities Coalition.


This fits in with some things I am thinking about why " autism rocks "

Subject: Another perspective from a parent of a child with autism
Autistics Need Acceptance, Not Cure

Wisconsin State Journal
Saturday, April 24, 2004
Morton Ann Gernsbacher

This month, which is Autism Awareness Month, I'm hiding my eyes and those of my autistic 8-year old son from the media. National headlines that describe autism as an epidemic, or pandemic. Public service announcements liken autism to being kidnapped.

A government Web site defines autism as a "devastating scourge." An autism "expert" decrees that autism is worse "than Sept. 11 and AIDS combined." An Autism Society Canada board member proclaims that autism is worse than cancer -- because people with autism have normal lifespans.

Have you -- like my son and me -- ever heard parents say how learning that their child was autistic was like experiencing a death in their family? Have you ever been at the playground when a mother classifies her children, standing right there beside her, as this one who is autistic but these other two who are -- thank goodness -- perfectly normal?

They say that autism entails difficulty taking another person's perspective, appreciating how another person might feel. But when I read or hear such hate speech I wonder: Exactly who has a problem taking another person's perspective? Who can't appreciate the feelings of others?

My son surely can. He understands quite well that there are so-called autism "advocates" who despise autism, who march thousand-fold against it with placards calling for its defeat, its demise. His demise.

Oh, you say, those people don't want to get rid of my son, they just want to get rid of that part of him that's autistic. But research demonstrates that autistic traits are distributed into the non-autistic population; some people have more of them, some have fewer. History suggests that many individuals whom we would today diagnose as autistic -- some severely so -- contributed profoundly to our art, our math, our science, and our literature.

Most poignantly, many autistics affirm that it would be impossible to segregate the part of them that is autistic. To take away their autism is to take away their personhood. Despite our politically correct labeling, they are autistic; they don't "have" autism any more than homosexuals have gayness or lesbianism. Like their predecessors in human rights, many autistics don't want to be cured; they want to be accepted. And like other predecessors in civil rights, many autistics don't want to be required to imitate the majority just to earn their rightful place in society.

I'm a middle-aged psychology professor who holds an endowed chair at a major research university. But my son has taught me far more than I ever learned in my lab. Every time he walks by a poster avowing that autism must be eradicated, he teaches me grace. Every time he ignores one of the countless scholarly articles that tower above my desk, asserting he is disordered, he teaches me tolerance. Every time he embraces a world that so frequently rebuffs him, he teaches me unconditional love.

What if next year we celebrate the diversity of social interaction observed within and across all cultures? What if this "awareness" month marked a time to appreciate the variation that all humans demonstrate in their style and competence in communication? What if it heralded an era during which we marveled at the determined focus that in my occupation often wins indefinite tenure but in a precocious child gets labeled as diseased?

Then, neither my son nor I would feel compelled to hide.

Gernsbacher is Vilas Research Professor and Sir Frederic Bartlett
Professor of Psychology, UW-Madison.


Thanks for Listening.

May 4, 2004

http://www.kindtree.org

Autism Spectrum Disorder (ASD) is a neurobiological disorder of development.  It causes problems with the way a person processes, uses and organizes information.  ASD affects a person's abilities in Communication, Social Interaction and Sensory Processing.  People with ASD may also have restricted, repetitive behavior, interests, and activities that can affect how they learn.