KindTree is dedicated to serving and celebrating the Autism Community through art, education, and recreation. With warm hearted whimsy, an open sense of family and a deep level of caring, we reach inside ourselves to embrace our flaws, gather our strengths, and offer our love while reaching out to people with autism spectrum disorders, their families and care givers. Through the power of self-advocacy in an atmosphere of acceptance and respect, autistic and neuro-normal people alike can work toward self- realization.
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Autism Community News   April, 2004

KindTree Productions, Inc. “Autism Rocks” is at it again:

another groundbreaking,
fun-raiser event to celebrate the Autism Community.
Please join in the fun with
the Raventones.

Visit www.escrip.com

Art by people with autism:
Notecards and More...
Help Support Artists
With Autism

 

KindTree   FLASH !       April, 2004            www.kindtree.org

Greetings:

Spring again. Smells nice. Feels warm. We made it. I'm really excited about our upcoming Family Festival. Make hats, paint a funny face, goof around. Emily, David, Nel, Tim and TR and Randy will make beautiful music. See your friends. Laugh. I hope you can come, Sunday the 18th, this weekend.Our Forum is coming up, too. It's fee - free so everyone can come. It's worth way more than we charge. And Bridgeway House is preparing for their major conference with Donna Williams next Tuesday. We are lucky here in Eugene.

Back in December a bunch of us gathered and decided to begin the process of forming an Autism Society of Oregon, Lane County Chapter. We've received a revised application from the AS of Oregon. Members of the Boards of Bridgeway House, the Asperger Advocacy Coalition and KindTree Productions, Inc. have sent it in and are working on a chapter structure. This new chapter could help the local autism community through greater visibility, educational and support options, and improved coordination of our many activies. If you have autism in your family, Lane County is a good place to be. For a list of local autism resources, go here.

And one last word - COMPUTERS. We have developed a backlog - a waiting list - of folks looking for machines. We need help from some computer experts to get the ones we have up and running. Thanks to those who've called already. You, too, can call me  521 7208. Seeya...


KindTree - Autism Rocks  Giving Opportunities
HELP US OUT!!!

1) Order an Autism Rocks T-shirt. We're in the process of restocking and all sizes should be available, from kids medium to adult XXX large, in black, natural, and our new color - Forest Green! These are $15 each plus $4.50 shipping (unless you live close enough to come pick up? 521 7208). And don't forget our beautiful Note Cards!

2) Visit our online store at OregonLive CaféPress. This site features Autism Rocks logo items as well as clothing, bags, hats, baby things, holiday decorations and more printed with autist's art. Check it out today.

3) Sign up for Escrip! PLEASE SIGN UP! THIS IS WORKING!! This program can send a percentage of each purchase you make at a participating merchant  to KindTree Productions!  Just go to www.escrip.com and enroll. It took me about 5 minutes. Enter our ID # 153141696 or Eugene or search for KindTree. It's pretty simple. Participating merchants include VISA, MasterCard, Big 5 Sports, Carl's Junior, PC Market of Choice, Whole Foods Markets, Wild Oats, Office Max, AAMCO, Edie Bauer, Sharper Image, Payless shoes, and more. What'cha waiting for?

4) Send KindTree a personal donation. Your contributions are tax deductible and much appreciated. We need your help. Thanks.
You Can Do It! Our Donation Page...
 
Please direct all orders to: KindTree, 2096 1/2 Arthur St, Eugene, OR  97405 - 541 521 7208
 

KINDTREE CALENDAR:

 
 
KindTree's Autism Support Group for young and old adults with Autism Spectrum Disorders
Mondays,  May 10, June 14
 
St Mary's Episcopal Church, at Pearl and 13th in Eugene  4:30 - 6PM in the kindergarten classroom downstairs.
Facilitated by Cheryl Nel Applegate
Call Mary-Minn at 689 2228

Autism Rocks Family Festival

Sunday, April 18th, 6 - 11pm, Cozmic Pizza, $5 each - $15 family

KindTree Productions, Inc. “Autism Rocks” is at it again: another groundbreaking, fun-raiser event to celebrate the Autism Community. Please join in the fun.

The Autism Rocks Family Festival at Cozmic Pizza, Sunday, April 18, from 6 - 11 pm (April is “Autism Awareness Month”) will feature Kid’s activities (hat making, face painting, games and Max Lester, DJ extraordinaire!) from 6 - 7:30pm. Then the music starts on the big stage. Appearing will be children's music therapy specialist Emily Jensen, singin for all of us. David Gordon Kaswell will jazz you folks folky next. Then comes Tim Mueller (that's me) and Nel Applegate (that's m'bride). I think we'll make you happy.the Raventones

Headlining the evening’s fun, at 9:15, are THE RAVENTONES', a vibrant melange of surf, soul and folk psychedelia, rooted in songwriter TR Kelley's honky-tonk and blues background. You will feel the power.

We will have a cash raffle and pizza giveaway, great music, your friends. And people with autism get in free.

This is a great line-up of fun and music, all designed to raise money for KindTree Productions, an all volunteer, community based organization. KindTree has been providing services to people with autism in Lane County since 1997, including their one-of-a-kind Summer Autism Retreat and a wonderful Art Program. The admission for this event is a low $5 per person or $15 per family. You get 5 hours of fun for the whole family - plus a chance to win a large pizza from Cozmic Pizza!!

Please come out and support the Autism Community. Lane County has many times the national average population of people with autism - let’s show them we’re glad they are here!


KindTree Autism Forum

Sunday, May 16, 2004

Free

Supportive Interventions Throughout the Life-Span

 

1 p.m. - 6 p.m. Hilyard Community Center, 2580 Hilyard Eugene, Oregon 97405

Mission: The purpose of KindTree Autism Forum 2004 is to bring together families, individuals, service providers and caregivers whose lives are impacted by Autism or Asperger's. The forum is intended to provide an opportunity for dialogue and exchange of information, and to provide a platform to discuss prevailing issues, concerns, and possible solutions. Also, when you arrive, we shall ask you to list services you are presently using (for our resource guide, published in KindTree's subsequent newsletter) and concerns you’d like to address at our concluding brainstorming session .

Panel Format: brief panelist intro’s, questions, answers, and open discussion. Doors open at 1pm.

1:15-2:15pm: A panel of people with autism speak to their experiences.
Facilitated by Cheryl Nel Applegate. Speakers: Josh Fraim, T.R. Kelley, Max Lester, Mary-Minn Sirag.

2:30-3:30pm: Supportive interventions for kids from elementary school through high school.
Q&A facilitated by Donna Atkinson, parent. These interventions prevent difficult situations (such as meltdowns or other "behaviors") from escalating into something menacing and possibly even dangerous. Panelists: Jessica Neyman, Special Education Attorney; Betsy LaCroix, Director of Case Coordination for Direction Service; Marilyn Nersesian, Special Education Administrator for 4J; Mary Bromley, Special Education Teacher at Crest Drive Elementary; Nan Gray Lester, co-founder of the Asperger Advocacy Coalition.

3:45-4:45pm. Supportive interventions for adults.
Facilitated by Gary Cornelius, case manager for Lane DDS. These interventions prevent difficult situations from escalating into brushes with law enforcement, psychiatric personnel, and other officials unsavory and frightening to the freaking out autist. Other panelists will be Melissa Rizzo, Personal Agent from Full Access Brokerage; Steve Brown, group home provider and former group home manager at OSLP and former President of KindTree Productions; Jill Adler from Protective Services; Doris Germain, Autism Specialist for Linn-Benton County School District and teacher at Autism Training and Support.

5-6pm. Where-to, what-next brainstorming session with flip charts. Facilitated by Nan Gray Lester, co-founder of Asperger Advocacy Coalition

Agency display tables available.

Refreshments will be provided. Questions? 689-2228 Forum@kindtree.org


YES!!
KindTree Summer Autism Camp/Retreat
August 27 - 29, 2004
Just south of Florence, Oregon on Siltcoos Lake
*Cabins or Tent sites
*Lakeside and Ocean Walks
*Non-competitive Games
*Family Oriented
*Vegetarian Food
 The retreat is designed around the needs of those living with autism. Parents and caregivers can bring their autistic charges and relax with them over the weekend, knowing that they are in a safe and nurturing environment.
The retreat is a time for rejuvenation and solidarity. Autists are accepted and enjoyed for themselves, not forced into a procrustean neuro-normal mold.
This is some of the greatest autistic fun there is.
Boy Scout  Camp Baker, Siltcoos Lake
Go here for more info Go here to Volunteer

COMMUNITY CALENDAR:

Subject: April 13 speaker Bob Cattoche

Please plan to join us for the April meeting of the Asperger Advocacy Coalition this Tuesday 4/13 from 7 to 8:30pm at Autism Training and Support,1355 River Road. Our featured speaker this month is 4J Special Education Administrator Bob Cattoche. This is your opportunity to ask questions regarding support and services currently in place, and in the development stage, for our children with Autism Spectrum Disorders. If you have any questions regarding this meeting, or the Asperger Advocacy Coalition in general, always feel free to call me at 345-3467.
Regards, Nan Lester


Paul Collins will be at the UoO Bookstore on April 14, 2004 @ 7:00 p.m. .

More Here


The University of Oregon Bookstore hosts literary, artistic and musical events at the Bookstore and in the campus community. For times, dates, locations, authors and event summaries, make sure to check back with us regularly at UOBookstore.com. We look forward to seeing you at our next event! If you would like to contact our Events Coordinator for availability and/or information, please email Brian Juenemann or call 541.346.4331.


When literary historian Paul Collins' three-year-old son was diagnosed with autism, Collins did what he does best. He dug into the past to make sense of the perplexing present. While he and his wife met constantly with specialists and tried desperately to establish a proactive but safe environment at home, Paul traveled the globe for answers. His quest took him to the German village of the 18th century Wild Boy who charmed royalty and heads of state to the eccentric-filled Seattle labs of Microsoft.
Reviving the work of forgotten geniuses and unearthing obscure medical
archives, Paul Collins educated himself into a holistic understanding of his son's diagnoses and his family's future. The lesson is not lost on the reader.


Tuesday, April 20 Bridgeway House “Autism Conference 2004”

featuring Donna Williams, Dr. James Adams, and many others.

Join us for an amazing day of fresh perspective on treating autism. McDonald Theater, 1010 Willamette, 9am - 9pm. $100. Lunch provided. Call Patricia Wigney 541-345-0805.
More Info Here!

www.bridgewayhouse.org for classes and groups.


Autism Training and Support, Inc.
1355-B River Road , Eugene, OR 97404

April Workshops 2004 - Friday Series
Strategies for Working with Students with Autism Spectrum Disorder

$49 per workshop*

(These workshops are appropriate for teachers, educational assistants, parents, foster parents, support staff, case managers, counselors, or anyone who works with people with Autism Spectrum Disorder. The last workshop is for parents only.)

Friday, April 16, 2004 8:30 a.m. - 12:00 p.m.
Strategies for Sensory Processing Problems
Presented by Kay Monroe, OT
In this hands-on workshop, Kay will demonstrate activites and equipment for helping the student with Autism Spectrum Disorder cope with sensory processing problems.


Friday, April 23, 2004 **4:00 p.m. - 7:30 p.m.
Teaching Socialization Skills
Presented by Doris Germain, M.Ed
Doris will present strategies for teaching socialization skills to students with Autism Spectrum Disorder and will share resources that she uses in her social skills classes at Autism Training and Support, Inc.


Friday, April 30, 2004 8:30 a.m. - 12:00 p.m.
Understanding the IEP Process (for parents)
Presented by Dr. Cindy Herr and Mary Ann Winter-Messiers
In this workshop for parents, Cindy and Mary Ann will give a brief overview of the IEP process and lead a discussion for parents. There will be plenty of time for questions and answers regarding individual situations. This workshop is a follow-up to a previous workshop on the IEP process but you do not need to have attended that workshop in order to participate.


ART CAREERS PROGRAM ART SALE

Friday, May 7, 4 - 7pm, Hilyard Community Center, 2580 Hilyard, Eugene

Showcasing the work of community artists who experience disabilities. A variety of quality artistic pieces including painting, card and jewelry will be displayed and available for purchase. All proceeds from every sale go directly to the artist. Refreshments will be served. For more information, please call Molly Elliott, Hilyard Community Center, 682-5311


The Arc of Oregon Annual State Convention

Eugene Hilton

May 7th and 8th, 2004

Fast Facts:

¨ Hotel reservations Deadline: April 4, 2004—call today! 800-937-6660 or 541-342-2000. (Be sure to mention The Arc of Oregon Conference to obtain the group rate of $83 per night.)

¨ Early-Bird Registration Deadline: April 16, 2004

¨ Exhibits will be open throughout the conference (See preliminary schedule below.)

¨ Registration Desk opens on Friday, May 7, 2004 at 12:00 (See preliminary schedule below)

¨ Up to thirty-two break out sessions plus exhibits!

¨ Scholarships for registration will be available for people with developmental disabilities and their families who have not received these funds within the last two years. For more information click here or call Pam at 343-5256.


THE CHANGING FACE OF POVERTY
Community Action Directors of Oregon will sponsor a poverty conference,
"The Changing Face of Poverty" on November 15, 16 and 17 in Seaside, Oregon.

The keynote speech will be delivered by JIM HIGHTOWER, former Texas Agriculture Commissioner.

For information on the conference please call the Community Action Directors of Oregon (CADO) at (503) 316-3951 or email angie@cado-oregon.org


NEWS:

DIRECT SUPPORTS CONFERENCE SEEKS PRESENTERS

Presenters and exhibitors are being sought for The Oregon Conference on Direct Supports, a conference for direct support workers, self-advocates, and families, sponsored by the Oregon Developmental Disabilities Coalition in collaboration with the Oregon Rehabilitation Association.
Pre-conference Training: July 28
Conference Sessions: July 29 and 30

Oregon State University Conference Center, Corvallis, Oregon

The theme of the conference is "The Power of One", focusing on how one person can make a difference in the lives of many. Over 600 participants interested in the field of developmental disabilities are making plans to attend. The conference will offer close to 100 concurrent sessions on the following topics:
Aging Issues - Rights - Food, Fitness and Fun - Community Access/Connections/Resources - Person-Centered Planning - Mental Health Issues - Challenging Issues - Specific Disability Information- Motivation/Support - Best Practices for staff support - Values - Death, dying, grief issues - "DD Services 101" - Employment issues - Emerging Services

Session and Exhibit proposals are due on or before MONDAY, APRIL 26, 2004.
For presentation proposal materials, please contact:
Marianne Davis, Oregon Rehabilitation Association
1655 25th Street SE
Salem OR 97302
mdavis@oregonrehabilitation.org
> Fax: 503-585-3722
> phone: 503-585-3337


SELF-ADVOCATES AND TECHNOLOGY

A Beach Center survey for Self-Advocates about their use of information technology, including computers and cell phones, is on the web at http://survey.ablelinktech.com/QuestNet/bcstart.asp


We do not see things as they are. We see them as we are. -the Talmud


Activism:
 

National Autism Association Newsletter
The National Autism Association Weekly E-Newsletter.

JOIN THE OREGON NETWORK

The Oregon Network is a collaborative statewide network of disability organizations and their members, including people with disabilities, their families, friends, providers and policymakers.

The Oregon Network allows members to share information, receive action alerts, and learn about events at state, local and national level. Members will also have the opportunity to voice opinions on policy issues and learn about training and empowerment opportunities.

You may also use the form to receive The Oregon Clarion newspaper and The People First Connection magazine. Both publications are free.

Please help us grow this network. Forward this message to friends and colleagues. There is strength in numbers.

To join The Oregon Network simply visit www.ocdd.org and click on the link.

The Oregon Network is a project of the Oregon Council on Developmental Disabilities and the Oregon Developmental Disabilities Coalition.


April 2004

April Legislative Emergency Board

On April 8-9, the Legislative Emergency Board (E-Board) met to, in addition to other budget decisions, take significant actions in the wake of Measure 30’s failure.Elimination of Oregon Health Plan - Standard Population

One of the most noteworthy actions taken was the elimination of Oregon Health Plan (OHP) Standard coverage, which will cause 49,000 low-income Oregonians to lose OHP health care coverage on August 1. The number of enrollees on OHP Standard had already decreased by an estimated 30,000 to 40,000 since 2003 when changes such as the addition of co-pays, premium requirements, and elimination of mental health and chemical dependency coverage, were implemented by the Legislature. This latest elimination of OHP Standard coverage will save DHS $41.5 million, but is expected to have a significant impact on county health centers and local hospitals.Restoration of OHP Standard

Director of Human Services (DHS) Gary Weeks shared the department’s efforts to restore OHP Standard coverage by tapping "provider tax" revenues. The provider tax was part of the bipartisan revenue package, HB 2152, that was approved by the 2003 Legislature. It was originally intended to generate revenues for medical providers in order to attract federal Medicaid funds. It is the one tax measure from HB 2152 that was not included in Measure 30. Therefore, DHS will focus on securing agreement from the providers - hospitals and managed care organizations - to dedicate revenues to restoring OHP Standard. DHS is also required to obtain a federal waiver in order to change the use of provider taxes. The Governor, DHS and advocates are currently working with Oregon’s federal delegation to secure the federal waiver. DHS Budget Rebalance

Elimination of OHP Standard occurred as part of the DHS budget rebalance process that occurs every six months to reflect program cost increases and savings, revenue fluctuations, and caseload changes. Initially, DHS was mandated to reduce its budget by $179 million on May 1 as a result of Measure 30’s failure, through HB 5077. Administrative efficiencies, lower caseloads, medical eligibility changes, and other adjustments created a "savings" for DHS of $117.2 million. Therefore, through its rebalance, and in response to Measure 30’s failure, the E-Board reduced the DHS budget by $53.8 million.Measure 30 DHS Budget Reductions

In addition to the elimination of OHP Standard, the following cuts occurred:

Elimination of Emergency Assistance for cases that do not involve domestic violence ($3.2 million)

Reduction of acute psychiatric care ($0.9 million)

Elimination of planned MEDS start-up (retention of General Fund support for HIV and transplant cases only) ($9 million)

Cancellation of Children’s Health Insurance Program (CHIP) eligibility expansion from 185% to 200% of the federal poverty level ($0.8 million)DHS Rebalance Restorations

The E-Board approved the following restorations for DHS programs and services:

$8 million in the special purpose appropriation fund for state medical assistance programs, including services for seniors and people with disabilities eligibility levels 12 and 13

$1 million in general purpose appropriation funds for Oregon Project Independence

$3.8 million in lottery funds to restore the Gambling Addiction Program cut by Measure 30The E-Board directed DHS to report back in June on the status of negotiations to maintain OHP Standard with provider tax revenue. In September, DHS will report on efforts to increase community acute psychiatric care capacity in lieu of opening more wards at the Oregon State Hospital.Community Corrections Restorations

Efforts to fully restore Measure 30 budget reductions to the Department of Corrections community corrections grants to counties, totaling $17.8 million, were not fruitful; however, the E-Board did make a partial restoration to counties. A last minute agreement by the Speaker of the House, Senate President, and Governor yielded an $8.9 million appropriation of E-Board funds to fully cover the July and October payments that counties would have received were it not for the disappropriation from failure of Measure 30. The appropriation is twice the amount the Legislative Fiscal Office recommended. The Department of Corrections is expected to return in September to consider requesting remaining E-Board funds to continue community corrections services.State Crime Lab Restorations

$3.9 million was allocated from E-Board funds to restore HB 5077 cuts triggered by failure of Measure 30. The appropriation allows for continued operation of the only statewide crime lab system in the state performing services related to controlled substances, toxicology, blood alcohol, trace analysis, arson, clandestine drug lab analysis, DNA, firearms, latent prints, and questioned documents. Local law enforcement agencies and district attorneys rely on the state crime lab in their operationsFor more information on E-Board activities, contact Stephanie Soden at Stephanie.a.soden@co.multnomah.or.us <mailto:Stephanie.a.soden@co.multnomah.or.us> or 503-988-6045. Joint Health and Human Services Committee

On April 6, the Joint Health and Human Services Committee met. In addition to the DHS budget rebalance proposal slated for the E-Board, the committee heard updates from the public health, runaway youth, and affordable housing for people with developmental disabilities work groups.


Do You Know Your Rights?

 

What is the Americans with Disabilities Act?

What is the Rehabilitation Act of 1973?

What is the Individuals with Disabilities Education Act (IDEA)?

What is the Developmental Disabilities (DD) Assistance and Bill of Rights Act?

What is the Architectural Barriers Act (ABA)?

What is the Air Carriers Access Act (ACAA)?

What is the Fair Housing Act (FHA)?

What is the Civil Rights of Institutionalized Persons Act (CRIPA)?

What is the Temporary Assistance for Needy Families program?

 

Other Resources from NCD

ADA Technical Assistance Program

Catalog of Federal Domestic Assistance

Contacting your U.S. Representative

Contacting your U.S. Senator

Government Benefits (Your Benefits Connection)

healthfinder® - your guide to reliable health information

Housing for People with Disabilities

Independent Living Centers

MEDLINEplus Health Information

Parent Training and Information Centers

Social Security Disability Benefits Information

State Mental Health Agencies

State Protection and Advocacy Agencies

State Resources

State Vocational and Rehabilitation Agencies

Su Familia--A Bi-Lingual Helpline (English)

Su Familia--A Bi-Lingual Helpline (Spanish)

Thomas Legislative Information on the Internet


Thanks for Listening.

April 11, 2004

http://www.kindtree.org

Autism Spectrum Disorder (ASD) is a neurobiological disorder of development.  It causes problems with the way a person processes, uses and organizes information.  ASD affects a person's abilities in Communication, Social Interaction and Sensory Processing.  People with ASD may also have restricted, repetitive behavior, interests, and activities that can affect how they learn.