Spring again. Smells nice. Feels warm.
We made it. I'm really excited about our upcoming Family
Festival. Make hats, paint a funny face, goof around. Emily,
David, Nel, Tim and TR and Randy will make beautiful music.
See your friends. Laugh. I hope you can come, Sunday the
18th, this weekend.Our Forum is coming up, too. It's fee
- free so everyone can come. It's worth way more than we
charge. And Bridgeway House is preparing for their major
conference with Donna Williams next Tuesday.
We are lucky here in Eugene.
Back in December a bunch of us gathered
and decided to begin the process of forming an Autism
Society of Oregon, Lane County Chapter. We've received
a revised application from the AS of Oregon. Members of
the Boards of Bridgeway House, the Asperger Advocacy Coalition
and KindTree Productions, Inc. have sent it in and are working
on a chapter structure. This new chapter could help the
local autism community through greater visibility, educational
and support options, and improved coordination of our many
activies. If you have autism in your family, Lane County
is a good place to be. For a list of local autism resources,
go here.
And one last word - COMPUTERS.
We have developed a backlog - a waiting list - of folks
looking for machines. We need help from some computer experts
to get the ones we have up and running. Thanks to those
who've called already. You, too, can call me 521 7208.
Seeya...
KindTree - Autism Rocks Giving Opportunities
HELP US OUT!!!
1) Order an Autism Rocks T-shirt. We're in the process
of restocking and all sizes should be available, from kids
medium to adult XXX large, in black, natural, and our new
color - Forest Green!
These are $15 each plus $4.50 shipping (unless you live close
enough to come pick up? 521 7208). And don't forget our beautiful Note Cards!
2) Visit our online store at OregonLive CaféPress.
This site features Autism Rocks logo items as well as clothing,
bags, hats, baby things, holiday decorations and more printed
with autist's art. Check it out today.
3) Sign up for Escrip!
PLEASE SIGN UP! THIS IS WORKING!! This program can send
a percentage of each purchase you make at a participating
merchant to KindTree Productions! Just go to
www.escrip.com and enroll. It took me about
5 minutes. Enter our ID # 153141696 or Eugene or search
for KindTree. It's pretty simple. Participating merchants
include VISA, MasterCard, Big 5 Sports, Carl's Junior, PC
Market of Choice, Whole Foods Markets, Wild Oats, Office
Max, AAMCO, Edie Bauer, Sharper Image, Payless shoes, and
more. What'cha waiting for?
4) Send KindTree a personal donation.
Your contributions are tax deductible and much appreciated.
We need your help. Thanks.
KindTree Productions, Inc. “Autism Rocks”
is at it again: another groundbreaking, fun-raiser event
to celebrate the Autism Community. Please join in the
fun.
The Autism Rocks Family Festival at Cozmic Pizza,
Sunday, April 18, from 6 - 11 pm (April
is “Autism Awareness Month”) will feature
Kid’s activities (hat making, face painting, games
and Max Lester, DJ extraordinaire!) from 6 - 7:30pm. Then
the music starts on the big stage. Appearing will be children's
music therapy specialist Emily Jensen, singin for all
of us. David Gordon Kaswell will jazz you folks folky
next. Then comes Tim Mueller (that's me) and Nel Applegate
(that's m'bride). I think we'll make you happy.
Headlining the evening’s fun, at 9:15, are THE
RAVENTONES', a vibrant melange of surf, soul
and folk psychedelia, rooted in songwriter TR
Kelley's honky-tonk and blues background. You
will feel the power.
We will have a cash raffle and pizza giveaway, great
music, your friends. And people with autism get in free.
This is a great line-up of fun and music, all designed
to raise money for KindTree Productions, an all volunteer,
community based organization. KindTree has been providing
services to people with autism in Lane County since 1997,
including their one-of-a-kind Summer Autism Retreat and
a wonderful Art Program. The admission for this event
is a low $5 per person or $15 per family. You get 5 hours
of fun for the whole family - plus a chance to win a large
pizza from Cozmic Pizza!!
Please come out and support the Autism Community. Lane
County has many times the national average population
of people with autism - let’s show them we’re
glad they are here!
KindTree
Autism Forum
Sunday, May 16, 2004
Free
Supportive Interventions
Throughout the Life-Span
1 p.m. - 6 p.m. Hilyard Community Center, 2580 Hilyard
Eugene, Oregon 97405
Mission: The purpose of KindTree Autism Forum 2004 is
to bring together families, individuals, service providers
and caregivers whose lives are impacted by Autism or Asperger's.
The forum is intended to provide an opportunity for dialogue
and exchange of information, and to provide a platform
to discuss prevailing issues, concerns, and possible solutions.
Also, when you arrive, we shall ask you to list services
you are presently using (for our resource guide, published
in KindTree's subsequent newsletter) and concerns you’d
like to address at our concluding brainstorming session
.
Panel Format: brief panelist intro’s, questions,
answers, and open discussion. Doors open at 1pm.
1:15-2:15pm: A panel of people with autism speak
to their experiences.
Facilitated by Cheryl Nel Applegate. Speakers: Josh Fraim,
T.R. Kelley, Max Lester, Mary-Minn Sirag.
2:30-3:30pm: Supportive interventions for kids
from elementary school through high school.
Q&A facilitated by Donna Atkinson, parent. These interventions
prevent difficult situations (such as meltdowns or other
"behaviors") from escalating into something
menacing and possibly even dangerous. Panelists: Jessica
Neyman, Special Education Attorney; Betsy LaCroix, Director
of Case Coordination for Direction Service; Marilyn Nersesian,
Special Education Administrator for 4J; Mary Bromley,
Special Education Teacher at Crest Drive Elementary; Nan
Gray Lester, co-founder of the Asperger Advocacy Coalition.
3:45-4:45pm. Supportive interventions for adults.
Facilitated by Gary Cornelius, case manager for Lane DDS.
These interventions prevent difficult situations from
escalating into brushes with law enforcement, psychiatric
personnel, and other officials unsavory and frightening
to the freaking out autist. Other panelists will be Melissa
Rizzo, Personal Agent from Full Access Brokerage; Steve
Brown, group home provider and former group home manager
at OSLP and former President of KindTree Productions;
Jill Adler from Protective Services; Doris Germain, Autism
Specialist for Linn-Benton County School District and
teacher at Autism Training and Support.
5-6pm. Where-to, what-next brainstorming session
with flip charts. Facilitated by Nan Gray Lester, co-founder
of Asperger Advocacy Coalition
YES!!
KindTree
Summer Autism Camp/Retreat
August
27 - 29, 2004
Just south
of Florence, Oregon on Siltcoos Lake
*Cabins
or Tent sites
*Lakeside
and Ocean Walks
*Non-competitive
Games
*Family
Oriented
*Vegetarian
Food
The
retreat is designed around the needs of those living
with autism. Parents and caregivers can bring their
autistic charges and relax with them over the weekend,
knowing that they are in a safe and nurturing environment.
The retreat
is a time for rejuvenation and solidarity. Autists are
accepted and enjoyed for themselves, not forced into
a procrustean neuro-normal mold.
This is
some of the greatest autistic fun there is.
Please plan to join us for the April
meeting of the Asperger Advocacy Coalition
this Tuesday 4/13 from 7 to 8:30pm at Autism
Training and Support,1355 River Road. Our featured
speaker this month is 4J Special Education Administrator
Bob Cattoche. This is your opportunity to
ask questions regarding support and services currently
in place, and in the development stage, for our children
with Autism Spectrum Disorders. If you have any questions
regarding this meeting, or the Asperger Advocacy Coalition
in general, always feel free to call me at 345-3467.
Regards, Nan Lester
Paul Collins
will be at the UoO Bookstore on April 14,
2004 @ 7:00 p.m. .
The University of Oregon Bookstore
hosts literary, artistic and musical events at the
Bookstore and in the campus community. For times,
dates, locations, authors and event summaries, make
sure to check back with us regularly at UOBookstore.com.
We look forward to seeing you at our next event! If
you would like to contact our Events Coordinator for
availability and/or information, please email Brian
Juenemann or call 541.346.4331.
When literary historian Paul Collins' three-year-old
son was diagnosed with autism, Collins did what he
does best. He dug into the past to make sense of the
perplexing present. While he and his wife met constantly
with specialists and tried desperately to establish
a proactive but safe environment at home, Paul traveled
the globe for answers. His quest took him to the German
village of the 18th century Wild Boy who charmed royalty
and heads of state to the eccentric-filled Seattle
labs of Microsoft.
Reviving the work of forgotten geniuses and unearthing
obscure medical
archives, Paul Collins educated himself into a holistic
understanding of his son's diagnoses and his family's
future. The lesson is not lost on the reader.
Tuesday, April
20 Bridgeway House “Autism
Conference 2004”
featuring Donna Williams, Dr.
James Adams, and many others.
Join us for an amazing day of fresh perspective on
treating autism. McDonald Theater, 1010 Willamette,
9am - 9pm. $100. Lunch provided. Call Patricia Wigney
541-345-0805. More
Info Here!
April Workshops 2004
- Friday Series Strategies for Working with Students with Autism
Spectrum Disorder
$49 per workshop*
(These workshops are appropriate
for teachers, educational assistants, parents, foster parents,
support staff, case managers, counselors, or anyone who
works with people with Autism Spectrum Disorder. The last
workshop is for parents only.)
Friday,
April 16, 2004 8:30 a.m. - 12:00 p.m.
Strategies for Sensory Processing Problems
Presented by Kay Monroe, OT
In this hands-on workshop, Kay will demonstrate activites
and equipment for helping the student with Autism Spectrum
Disorder cope with sensory processing problems.
Friday, April 23, 2004 **4:00 p.m. - 7:30
p.m.
Teaching Socialization Skills
Presented by Doris Germain, M.Ed
Doris will present strategies for teaching socialization
skills to students with Autism Spectrum Disorder and will
share resources that she uses in her social skills classes
at Autism Training and Support, Inc.
Friday, April 30, 2004 8:30 a.m. - 12:00
p.m.
Understanding the IEP Process (for parents)
Presented by Dr. Cindy Herr and Mary Ann Winter-Messiers
In this workshop for parents, Cindy and Mary Ann will give
a brief overview of the IEP process and lead a discussion
for parents. There will be plenty of time for questions
and answers regarding individual situations. This workshop
is a follow-up to a previous workshop on the IEP process
but you do not need to have attended that workshop in order
to participate.
ART
CAREERS PROGRAM ART SALE
Friday, May 7,
4 - 7pm, Hilyard Community Center, 2580 Hilyard, Eugene
Showcasing the work of
community artists who experience disabilities. A variety
of quality artistic pieces including painting, card and
jewelry will be displayed and available for purchase. All
proceeds from every sale go directly to the artist. Refreshments
will be served. For more information, please call Molly
Elliott, Hilyard Community Center, 682-5311
¨ Hotel reservations
Deadline: April 4, 2004—call today! 800-937-6660 or
541-342-2000. (Be sure to mention The Arc of Oregon Conference
to obtain the group rate of $83 per night.)
¨ Early-Bird Registration
Deadline: April 16, 2004
¨ Exhibits will be
open throughout the conference (See preliminary schedule
below.)
¨ Registration Desk
opens on Friday, May 7, 2004 at 12:00 (See preliminary schedule
below)
¨ Up to thirty-two
break out sessions plus exhibits!
¨ Scholarships
for registration will be available for people with developmental
disabilities and their families who have not received these
funds within the last two years. For more information click
here or call Pam at 343-5256.
THE CHANGING
FACE OF POVERTY
Community Action Directors of Oregon will sponsor
a poverty conference,
"The Changing Face of Poverty" on November
15, 16 and 17 in Seaside, Oregon.
The keynote speech will be delivered by JIM
HIGHTOWER, former Texas Agriculture Commissioner.
For information on the conference please call the
Community Action Directors of Oregon (CADO) at (503)
316-3951 or email angie@cado-oregon.org
NEWS:
DIRECT
SUPPORTS CONFERENCE SEEKS PRESENTERS
Presenters and exhibitors
are being sought for The Oregon Conference on Direct Supports,
a conference for direct support workers, self-advocates, and
families, sponsored by the Oregon Developmental Disabilities
Coalition in collaboration with the Oregon Rehabilitation
Association.
Pre-conference Training: July 28
Conference Sessions: July 29 and 30
Oregon State University Conference Center, Corvallis, Oregon
The theme of the conference
is "The Power of One", focusing on how one person
can make a difference in the lives of many. Over 600 participants
interested in the field of developmental disabilities are
making plans to attend. The conference will offer close to
100 concurrent sessions on the following topics:
Aging Issues - Rights - Food, Fitness and Fun - Community
Access/Connections/Resources - Person-Centered Planning -
Mental Health Issues - Challenging Issues - Specific Disability
Information- Motivation/Support - Best Practices for staff
support - Values - Death, dying, grief issues - "DD Services
101" - Employment issues - Emerging Services
Session and Exhibit
proposals are due on or before MONDAY, APRIL 26, 2004.
For presentation proposal materials, please contact:
Marianne Davis, Oregon Rehabilitation Association
1655 25th Street SE
Salem OR 97302 mdavis@oregonrehabilitation.org
> Fax: 503-585-3722
> phone: 503-585-3337
The Oregon Network is a collaborative statewide network
of disability organizations and their members, including
people with disabilities, their families, friends, providers
and policymakers.
The Oregon Network allows members to share information,
receive action alerts, and learn about events at state,
local and national level. Members will also have the opportunity
to voice opinions on policy issues and learn about training
and empowerment opportunities.
You may also use the form to receive The Oregon Clarion
newspaper and The People First Connection magazine. Both
publications are free.
Please help us grow this network. Forward this message to
friends and colleagues. There is strength in numbers.
To join The Oregon Network simply visit www.ocdd.org
and click on the link.
The Oregon Network is a project of the Oregon Council on
Developmental Disabilities and the Oregon Developmental
Disabilities Coalition.
April
2004
April
Legislative Emergency Board
On April 8-9, the Legislative Emergency
Board (E-Board) met to, in addition to other budget decisions,
take significant actions in the wake of Measure 30’s
failure.Elimination of Oregon Health Plan - Standard Population
One of the most noteworthy actions
taken was the elimination of Oregon Health Plan (OHP) Standard
coverage, which will cause 49,000 low-income Oregonians
to lose OHP health care coverage on August 1. The number
of enrollees on OHP Standard had already decreased by an
estimated 30,000 to 40,000 since 2003 when changes such
as the addition of co-pays, premium requirements, and elimination
of mental health and chemical dependency coverage, were
implemented by the Legislature. This latest elimination
of OHP Standard coverage will save DHS $41.5 million, but
is expected to have a significant impact on county health
centers and local hospitals.Restoration of OHP Standard
Director of Human Services (DHS) Gary
Weeks shared the department’s efforts to restore OHP
Standard coverage by tapping "provider tax" revenues.
The provider tax was part of the bipartisan revenue package,
HB 2152, that was approved by the 2003 Legislature. It was
originally intended to generate revenues for medical providers
in order to attract federal Medicaid funds. It is the one
tax measure from HB 2152 that was not included in Measure
30. Therefore, DHS will focus on securing agreement from
the providers - hospitals and managed care organizations
- to dedicate revenues to restoring OHP Standard. DHS is
also required to obtain a federal waiver in order to change
the use of provider taxes. The Governor, DHS and advocates
are currently working with Oregon’s federal delegation
to secure the federal waiver. DHS Budget Rebalance
Elimination of OHP Standard occurred
as part of the DHS budget rebalance process that occurs
every six months to reflect program cost increases and savings,
revenue fluctuations, and caseload changes. Initially, DHS
was mandated to reduce its budget by $179 million on May
1 as a result of Measure 30’s failure, through HB
5077. Administrative efficiencies, lower caseloads, medical
eligibility changes, and other adjustments created a "savings"
for DHS of $117.2 million. Therefore, through its rebalance,
and in response to Measure 30’s failure, the E-Board
reduced the DHS budget by $53.8 million.Measure 30 DHS Budget
Reductions
In addition to the elimination of OHP
Standard, the following cuts occurred:
Elimination of Emergency Assistance
for cases that do not involve domestic violence ($3.2 million)
Reduction of acute psychiatric care
($0.9 million)
Elimination of planned MEDS start-up
(retention of General Fund support for HIV and transplant
cases only) ($9 million)
Cancellation of Children’s Health
Insurance Program (CHIP) eligibility expansion from 185%
to 200% of the federal poverty level ($0.8 million)DHS Rebalance
Restorations
The E-Board approved the following
restorations for DHS programs and services:
$8 million in the special purpose appropriation
fund for state medical assistance programs, including services
for seniors and people with disabilities eligibility levels
12 and 13
$1 million in general purpose appropriation
funds for Oregon Project Independence
$3.8 million in lottery funds to restore
the Gambling Addiction Program cut by Measure 30The E-Board
directed DHS to report back in June on the status of negotiations
to maintain OHP Standard with provider tax revenue. In September,
DHS will report on efforts to increase community acute psychiatric
care capacity in lieu of opening more wards at the Oregon
State Hospital.Community Corrections Restorations
Efforts to fully restore Measure 30
budget reductions to the Department of Corrections community
corrections grants to counties, totaling $17.8 million,
were not fruitful; however, the E-Board did make a partial
restoration to counties. A last minute agreement by the
Speaker of the House, Senate President, and Governor yielded
an $8.9 million appropriation of E-Board funds to fully
cover the July and October payments that counties would
have received were it not for the disappropriation from
failure of Measure 30. The appropriation is twice the amount
the Legislative Fiscal Office recommended. The Department
of Corrections is expected to return in September to consider
requesting remaining E-Board funds to continue community
corrections services.State Crime Lab Restorations
$3.9 million was allocated from E-Board
funds to restore HB 5077 cuts triggered by failure of Measure
30. The appropriation allows for continued operation of
the only statewide crime lab system in the state performing
services related to controlled substances, toxicology, blood
alcohol, trace analysis, arson, clandestine drug lab analysis,
DNA, firearms, latent prints, and questioned documents.
Local law enforcement agencies and district attorneys rely
on the state crime lab in their operationsFor more information
on E-Board activities, contact Stephanie Soden at Stephanie.a.soden@co.multnomah.or.us
<mailto:Stephanie.a.soden@co.multnomah.or.us> or 503-988-6045.
Joint Health and Human Services Committee
On April 6, the Joint Health and Human
Services Committee met. In addition to the DHS budget rebalance
proposal slated for the E-Board, the committee heard updates
from the public health, runaway youth, and affordable housing
for people with developmental disabilities work groups.
Autism Spectrum Disorder (ASD)
is a neurobiological disorder of development. It causes
problems with the way a person processes, uses and organizes
information. ASD affects a person's abilities in Communication,
Social Interaction and Sensory Processing. People with
ASD may also have restricted, repetitive behavior, interests,
and activities that can affect how they learn.